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December 07, 2012



First, thank you for a salient, balanced view on what we moms of sons juggle today. I am writing a book about my sons' journey since diagnosis with a rare stigmatizing disease. The medical demands we face have necessitated he and I often being closer than a mom and teen boy might otherwise be. Being together twelve hours a day a few times a week, in cars, waiting rooms, hospitals and labs often exhausted and dehydrated has also ensured that we become pals, guys, sidekicks together, without conventional roles at all. I have debated the 'health' of this outcome, but will struggle less with it now thanks to your work. With gratitude.

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